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中华妇幼临床医学杂志(电子版)

中华妇幼临床医学杂志(电子版) ›› 2012, Vol. 08 ›› Issue (06) : 711 -715. doi: 10.3877/cma.j.issn.1673-5250.2012.06.009

所属专题： 文献；

论著

四川地区癫痫患儿家长对癫痫的认知程度及其心理状况分析
蔡浅云1, 罗蓉1,*,*(), 周洁兰1, 谢莉萍1, 蔡晓唐1, 喻韬1, 叶久才1   
  1. 1. 610041　成都，四川大学华西第二医院小儿神经科
  • 收稿日期:2012-05-29 修回日期:2012-11-10 出版日期:2012-12-01
  • 通信作者: 罗蓉

Investigation and Analysis About the Knowledge of Epilepsy and Psychological Status of the Parents of Children With Epilepsy in Sichuan Area

Qian-yun CAI1, Rong LUO1(), Jie-lan ZHOU1, Li-ping XIE1, Xiao-tang CAI1, Tao YU1, Jiu-cai YE1   

  1. 1. Department of Paediatric Neurology, West China Second University Hospital, Sichuan University, Chengdu 610041, Sichuan Province, China
  • Received:2012-05-29 Revised:2012-11-10 Published:2012-12-01
  • Corresponding author: Rong LUO
  • About author:
    (Corresponding author: LUO Rong, Email: )
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引用本文：

蔡浅云, 罗蓉, 周洁兰, 谢莉萍, 蔡晓唐, 喻韬, 叶久才. 四川地区癫痫患儿家长对癫痫的认知程度及其心理状况分析[J/OL]. 中华妇幼临床医学杂志(电子版), 2012, 08(06): 711-715.

Qian-yun CAI, Rong LUO, Jie-lan ZHOU, Li-ping XIE, Xiao-tang CAI, Tao YU, Jiu-cai YE. Investigation and Analysis About the Knowledge of Epilepsy and Psychological Status of the Parents of Children With Epilepsy in Sichuan Area[J/OL]. Chinese Journal of Obstetrics & Gynecology and Pediatrics(Electronic Edition), 2012, 08(06): 711-715.

目的

分析四川地区癫痫患儿家长对癫痫的认知程度及其心理状况。

方法

选择2011年5月至7月于本院进行视频脑电图(VEEG)检查的202名四川地区癫痫患儿的家长(每名患儿选择1位家长)为研究对象，并按照患儿癫痫诊疗情况分为A组(n＝108)和B组(n＝94)(本研究遵循的程序符合本院人体试验委员会所制定的伦理学标准，得到该委员会批准，分组征得受试对象的知情同意，并与之签署临床研究知情同意书)。对两组家庭背景资料、癫痫认知程度和心理状况等多方面进行调查。

结果

两组癫痫认知达非常了解程度的患儿家长均<5.0%，两组对癫痫认知程度比较，差异有统计学意义(P<0.05)。两组在医生咨询、杂志和电视宣传片的癫痫了解途径中，差异有统计学意义(P<0.05)。两组有显著心理影响的患儿家长均>35%，且两组家长心理状态比较，差异无统计学意义(P>0.05)。两组80%以上家长既关注癫痫药物效果也关注药物副反应，两组比较，差异无统计学意义(P＝0.076)。

结论

癫痫患儿家长对癫痫的认知程度亟待提高。医护人员应加强对其进行癫痫疾病知识的普及和教育工作，并关注该病患儿及其家长的心理健康。

关键词: 癫痫, 儿童, 家长, 认知, 心理
Objective

To investigate and analyze the knowledge about epilepsy and psychological status of the parents of children with epilepsy in Sichuan area.

Methods

Form May to July 2011, 202 parents were surveyed when their children with epilepsy were accepting video electroencephalogram(VEEG) monitoring in our hospital, and divided into group A(n=108)and group B(n=94) according to children's treatment.The investigated content included background of the parents and their children, parents'knowledge about epilepsy and the psychological status of the family. The study protocol was approved by the Ethical Review Board of Investigation in Human Being of West China Second University Hospital.Informed consent was obtained from each parent.

Results

The percentages of parents who had very good knowledge about epilepsy were all less than 5%. Parents from group A showed better understanding about epilepsy than those of group B(P<0.05). Among the ways to know about epilepsy, there had significant differences in consulting doctors, reading magazines and watch TV programs between two groups(P<0.05). The percentages of parents who had obvious psychological problems were all more than 35%, and there was no significant difference between two groups(P>0.05). More than 80% parents in both groups not only cared about the treatment effects of the antiepileptic drugs but also their side effects, and the difference between two groups was not statistically significant(P>0.05).

Conclusions

It is very necessary to educate parents of epileptic children about the knowledge of epilepsy, meanwhile physicians should pay more attention to the psychological health of the family with epileptic children.

Key words: epilepsy, children, parents, knowledge, psychological status
表1 两组家长背景资料比较[n(%)]
Table 1 Comparison of parents' background data between two groups[n(%)]
组别 n 性别 年龄(岁) 平均年龄(岁) 文化程度
男性 女性 小学以下 小学 初中 高中或中专 大专以上
A组 108 37(34.3) 71(65.7) 23～39 29.4 5(4.6) 7(6.5) 44(40.7) 25(23.1) 27(25.0)
B组 94 32(34.0) 62(66.0) 21～37 26.5 0(0.0) 8(8.5) 49(52.1) 21(22.3) 16(17.0)
χ2/t/Z ? 0.001 0.843 －1.007
P ? 0.974 0.200 0.314
表2 两组家长对癫痫的认知程度比较[n(%)]
Table 2 Comparison of parents' knowledge about epilepsy between two groups[n(%)]
项目 病因 临床表现 药物治疗 手术适应证 预后 预防 急救方法 药物不良反应
A组 ? ? ? ? ? ? ? ?
? 非常了解 4 (3.7) 0 (0.0) 2 (1.9) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0)
? 了解 28(25.9) 50(46.3) 48(44.4) 4 (3.7) 20(18.5) 16(14.8) 40(37.0) 26(24.1)
? 不太了解 58(53.7) 44(40.7) 44(40.7) 68(63.0) 60(55.5) 78(72.2) 50(46.3) 62(57.4)
? 完全不了解 18(16.7) 14(13.0) 14(13.0) 36(33.3) 28(25.9) 14(13.0) 18(16.7) 20(18.5)
B组 ? ? ? ? ? ? ? ?
? 非常了解 4 (4.3) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) 2 (2.1) 2 (2.1) 0 (0.0)
? 了解 14(14.9) 22(23.4) 12(12.8) 2 (2.1) 6 (6.4) 10(10.6) 20(21.3) 6 (6.4)
? 不太了解 40(42.6) 44(46.8) 32(34.0) 24(25.5) 46(48.9) 42(44.7) 44(46.8) 44(46.8)
? 完全不了解 36(38.3) 28(29.8) 50(53.2) 68(72.3) 42(44.7) 40(42，6) 28(29.8) 44(46.8)
Z －3.095 －3.818 －6.629 －5.393 －3.300 －3.725 －2.486 －4.856
P 0.002 0.000 0.000 0.000 0.001 0.000 0.013 0.000
表3 两组家长癫痫了解途径比较[n(%)]
Table 3 Comparison of adopted routes to learn epilepsy by parents between two groups[n(%)]
组别 n 查阅专业书籍 网络 医生咨询 杂志 电视宣传片 专题讲座 宣教资料
A组 108 20(18.5) 59(54.6) 91(84.3) 7(6.9) 32(29.6) 5(4.6) 6(5.6)
B组 94 22(23.4) 41(43.6) 56(59.6) 0(0.0) 45(47.9) 7(7.4) 4(4.3)
χ2 ? 0.728 2.438 15.455 6.311 7.091 0.714 0.181
P ? 0.393 0.118 0.000 0.012 0.008 0.389 0.671
表4 两组家长对癫痫讲座态度比较[n(%)]
Table 4 Comparison of parents' attitudes to epilepsy lecture between two groups[n(%)]
组别 n 非常愿意 愿意 无所谓 不愿意
A组 108 32(29.6) 70(64.8) 4(3.7) 2(1.9)
B组 94 32(34.0) 56(59.6) 0(0.0) 6(6.4)
Z ? －0.482
P ? 0.630
表5 两组家长心理状态比较[n(%)]
Table 5 Comparison of parents' psychological status between two groups[n(%)]
组别 智力影响 心理影响 社会歧视影响 预后影响
A组 ? ? ? ?
? 非常担心 70(64.8) 48(44.4) 40(37.0) 60(55.6)
? 担心 34(31.5) 56(51.9) 60(55.6) 42(38.9)
? 不担心 0 (0.0) 0 (0.0) 8 (7.4) 4 (3.7)
? 没想过 4 (3.7) 4 (3.7) 0 (0.0) 2 (1.8)
B组 ? ? ? ?
? 非常担心 58(61.7) 48(51.1) 34(36.2) 46(48.9)
? 担心 32(34.0) 38(40.4) 42(44.7) 46(48.9)
? 不担心 2 (2.1) 2 (2.1) 16(17.0) 0 (0.0)
? 没想过 2 (2.1) 6 (6.4) 2 (2.1) 2 (2.1)
Z －0.452 －0.521 －1.130 －0.670
P 0.651 0.603 0.259 0.503
表6 两组患儿心理状态比较[n(%)]
Table 6 Comparison of children's psychological status between two groups[n(%)]
组别 n 有影响 无影响
A组 108 30(27.8) 78(72.2)
B组 94 12(12.8) 82(87.2)
χ2 ? 6.877
P ? 0.009
表7 两组家长药物关注重点比较[n(%)]
Table 7 Comparison of parents'concern of antiepileptic drugs between two groups[n(%)]
组别 n 较关注药物效果 较关注药物不良反应 均较关注
A组 108 12(11.1) 4(3.7) 92(85.2)
B组 94 6 (6.4) 0(0.0) 88(93.6)
χ2 ? 5.143
P ? 0.076
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